7 Children Who Died Waiting For Medical Marijuana


Savannah Talley of Barnesville, Georgia was 8-years when she began having mysterious uncontrollable seizures. She was put into a medically induced coma and three weeks later, she was brain dead. Her parents decided to take her off life support and she died a short time later in May 2015.



Only TWO DAYS before her death her parents obtained one of the only temporary Georgia cannabis oil permits from Georgia Senator Allen Peak, sponsor of the cannabis oil bill, although the law doesn’t go into effect until July 2015. It was too late for Savannah. The cause of her sudden illness remains a mystery and her family will never know if CBD oil could have helped her.



Chloe Lucille Grauer-Lea of Memphis, Tennessee passed away last December at the age of 3 years old. In in her short life, Chloe was in a constant battle against seizures. Her parents reported to a local FOX affiliate news station that she had suffered an estimated 75,000 seizures in her lifetime with little hope of living a normal life.

Cannabis oil was a possible solution for Chloe’s parents, but delays and roadblocks to safe access of medical marijuana prevented her parents from ever trying it. Chloe’s passing without gaining access to oil rich in cannabinoids is a tragedy that continues to repeat itself in America. Chloe’s parents and grandmother continue to fight for marijuana law reform at the state and national level so other parents don’t have to endure the same heartache.



Dravet Syndrome is a terrible disease pushing parents and suffering children to the limit. We’ve covered Amelia Weaver’s success with cannabis oil as she too suffered from Dravet Syndrome.Sabina Rose Joana lost her life while her parents were trying to navigate New Jersey’s complex medical marijuana laws. Children suffering from Dravet can have hundreds of seizures a day, and may not be able to do basic things like sleep or walk. New Jersey’s medical marijuana laws require mountains of eye-straining paperwork and months of doctor visits just to be considered for treatment. Sabina ran out of time while her desperate parents raced against time to save her.





Lydia Schaeffer died in her sleep on Mother’s Day at age seven. She suffered from a rare genetic seizure disorder called Kleefstra Syndrome as well as epilepsy and autism. Lydia lived with steep medical and developmental challenges. Despite her mother’s efforts to lobby for passage of a CBD bill that eventually became law in the state of Wisconsin, the Schaeffer’s were told they would have to wait while the state figured out how to implement the program.




Another child suffering from Dravet Syndrome was 9-year old Anna Conte of Buffalo, New York. Like other children with Dravet, Anna had hundreds of seizures a day. Anna’s family fought tooth and nail to persuade New York state government leaders to pass a medical marijuana bill, which finally became reality when Governor Andrew Cuomo signed the bill into law. Cuomo gave the state’s health department 18 months to get the program up and running, however, 18 months was too long for Anna. She suffered a seizure that put her in a coma. She died in July 2014 …. waiting.




10-year old Isaac Carew of Brevard, Florida came home from the hospital late last December after one of his many brain surgeries to stop severe seizures. Isaac’s family indicated he had been suffering from seizures for years. Isaac’s parents were members of a network for parents with epileptic kids who were waiting on lawmakers to make medical marijuana available.

Unfortunately, Isaac was put into an induced coma early in 2015 with hopes of reducing seizures. He died on March 4th waiting for medical marijuana. An expensive DNA test right before his passing would reveal Isaac had a rare neurodegenerative illness known as Alper’s Disease.





Donella Nocera of Niagra Falls, New York was an 8-year old girl whose family wanted to grant her emergency access to medical marijuana to treat stage 4 brain cancer. Being able to have access to medical marijuana would have at least relieved some of his daughter’s pain, Donella’s dad said in an interview. She battled brain cancer for a year until she passed away waiting for Governor Andrew Cuomo to help speed up availability, which was passed under state law.










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